Indian_Blogs🇮🇳, Research Study

THISAbility – An Insight in Disabilities.

  • CLEIDOCRANIAL DYSPLASIA 

Meaning:

Cleidocranial Dysplasia is a rare genetic condition that affects the teeth and bones such as face, skull, spine or collarbone. People suffering from this condition might be formed differently than others or might be more fragile. They may not have certain bones like the collarbone. The word cleido in the name refers to collarbone and cranial refers to skull. People with cleidocranial dysplasia usually lead healthy and productive life.

Symptoms: 

  • A low, wide nasal bridge.
  • A wide, flat or protruding head.
  • Ear problems including ear infections and sometimes hearing loss.
  • Baby teeth do not come out on their own.
  • People having this condition have short stature.
  • They also have supernumerary (extra) teeth
  • Extra or missing ribs.
  • Incompletely formed or missing clavicles (collarbones).
  • Sloping shoulders.

Cure and how to take care of the person:

For children, facial reconstructive surgery on bones of the face to reshape the forehead or cheekbones can be performed. For those having knock knees, they can undergo lower leg surgery to correct it. Removal of small collarbone pieces that can cause arm pain or nerve problems. Calcium and vitamin D supplements can be given to strengthen bones. Sometimes speech therapy is needed during dental treatment process.

If a child has large openings between the skull bones, the head should be protected from blunt trauma. Such children should wear helmets during high-risk activities like bicycling.

Famous for his portrayal of Dustin Henderson in the famous Netflix series Stranger Things, Gaten Matarazzo was born with this rare genetic condition known as Cleidocranial Dysplasia.

He has very openly talked about his experience and also documented one of his surgeries, in which 14 supernumerary teeth were removed, on Instagram. He also uses dentures. After knowing about his condition the writers of Stranger Things incorporated this condition in his character as well.

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